Desanka received her porphyria diagnosis three days after giving birth: ‘For months i couldn’t hold my baby daughter – at 42, i had to retire’
Kurir 15.04.2025
Desanka first encountered this rare disease 25 years ago when her brother was diagnosed with porphyria – not knowing that just a few years later, she would face it herself. “My first encounter with porphyria was back in the year 2000, when my own brother was diagnosed with this rare disease.
Just days after the symptoms began – severe abdominal and back pain, an unnecessary abdominal surgery, and clinical death – he was transported from the General Hospital in Požarevac to the Emergency Centre in Belgrade, where he was diagnosed with porphyria. The haematology department saved his life. As a consequence of porphyria, my brother also developed epilepsy,” Desanka begins her story. Diagnosis came three days after giving birth That was when the research
